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Family Resources

More links coming soon!

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We recognize that we are all living through extraordinary times and now is the time for us to band together as a community and support each other any way we can. We would like to offer a list of resources to be accessed if families are looking for help. Please feel free to contact us at if we can be of any assistance to our heart community.

Let us know if you have questions or suggestions - email:​

CHD Support

CHLA Heart Institute

UCLA Mattel Children's Hospital Pediatric Cardiology

Miller Children's Hospital Long Beach Heart Institute

CHOC Children's Heart Institute

Rady Children's Heart Institute

Valley Children's Heart Center

Pacific Pediatric Cardiology

Kaiser Permanente Pediatric Cardiology Riverside County

Hopeful Hearts

Little Hearts

Kids with Heart

Pediatric Heart Network

Mended Little Hearts

COVID Support

Home Holidays Prep for COVID-19 

American Red Cross

CA Department of Health Guidance for Women and Families

Center for Children Resources for Families

Food Banks

Los Angeles Food Bank

Orange County Food Bank

San Diego Food Bank

Riverside/San Bernardino County Food Bank

Grief Support

Our House Grief Support

Mental Health Support

Child Mental Health Services

NAMI Guide for Families

Family Support Services

Center for Children Mental Health

OC Mental Health for Children

The Whole Child Mental Health

phaware Podcast with Gypsy!


Roslyn Rivera, RN, BSN is the Fetal and Pediatric Cardiology Outpatient Nurse Coordinator at the UCLA Children’s Heart Center. Since 2013, Roslyn has volunteered with Camp del Corazon, a nonprofit organization offering year-round activities for children and young adults with CHD.  She holds the role of Nurse Coordinator and as an Advisor for their adult CHD program called PACE. 

In this episode, Roslyn discusses the work of Camp del Corazon and its lasting impact on children and families affected by CHD and Pulmonary Hypertension. LISTEN HERE

I’m Aware That I’m Rare: Camp de Corazon Summer Camp 2023 READ ARTICLE HERE


Learn more about pulmonary hypertension trials at

Follow us on social @phaware Engage for a cure: #phaware

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